Evidentlyy turns lived experience into research signals. Share what you've noticed about your condition — and help science catch up to what patients already know.
Browse everything without an account. Post anonymously with no sign-up — or create an account to track your history and get personal insights.
Each week our AI groups similar observations across thousands of posts — surfacing signals no single patient could see alone.
Insights reach researchers as testable hypotheses. Patient experience becomes the agenda for science.
Every condition has its own community of patients, parents, and clinicians sharing what they've noticed. Browse freely — no account needed.
Every week our AI reads thousands of patient, parent, and clinician observations and groups them into signals worth investigating. These are not diagnoses — they are patterns worth researching.
Across 847 observations this week, patients and parents consistently report that tic frequency and severity increases meaningfully during high-pollen months (March–May). The AI identified "allergy season", "pollen", "spring", "histamine", and "hayfever" as a single cluster — suggesting a shared underlying mechanism. Three clinicians independently noted they've started asking about allergy history at intake.
A converging pattern across patient posts, parent observations, and clinician notes suggests that tic severity tracks the academic calendar in a way that stress alone doesn't explain. Summer improvements of 40–50% severity reduction are commonly reported — and the signal holds even in patients whose stress levels don't change significantly. The AI flagged this as distinct from the general "stress causes tics" signal because of the calendar specificity.
Over 1,200 observations across all poster types identify extended screen time as a trigger for increased tic frequency. The AI groups "screens", "phone", "video games", "YouTube", and "TV" as one cluster. Notably the signal appears in parent posts more than patient posts — suggesting patients may not always notice the correlation themselves.
612 observations link storm fronts and barometric pressure drops to tic worsening. The AI identifies this as distinct from the seasonal allergy cluster — patients describe "predicting rain", "the day before a storm", and "pressure changes" as reliable precursors to bad days. This signal also appears in migraine and chronic pain communities, suggesting a shared barometric sensitivity mechanism.
Evidentlyy aggregates lived experience from thousands of patients, parents, and clinicians into weekly AI-generated signals — giving you a hypothesis pipeline that no single study could produce.
Full export of structured and unstructured observations, tagged by condition, role, and posting date. Updated weekly. All identifiers removed.
Weekly AI-generated cluster reports showing which patterns are emerging, strengthening, or fading — with confidence scores and source observation samples.
Symptom severity logs from consenting users tracked daily over months — the kind of longitudinal data that's nearly impossible to collect in a traditional study.
Aggregate clinical observations from verified clinicians via MDMB — patterns observed across practices, not just individual patients.
Need specific structured data? We can add targeted questions to our community forms and collect data for your specific research question.
Reach our verified patient and parent community for study recruitment. IRB-compliant opt-in process with full transparency to participants.
We review all applications within 5 business days. Access is granted to verified academic institutions, research hospitals, and independent researchers with IRB approval. All data use must be disclosed to our community.
Track any symptom, see patterns over time, and optionally share your data to help researchers. Built for headaches, tics, mood, pain, sleep — or anything you need to monitor.
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Check back soon — we'll share our story, mission, and the team behind Evidentlyy.
Every spring my tics go through the roof — allergy season correlation is real. Anyone else tracking this?
Screen time reduction made a huge difference for my kid. Down from 4 hours to 1 hour and tics dropped noticeably.
Consistently seeing 40-50% tic reduction in summer across my pediatric patients. School calendar effect is real and underresearched.
Resources, strategies, and community wisdom for managing neurological and psychiatric conditions day-to-day — curated from patients, parents, and clinicians.
How sleep quality affects neurological symptoms — and evidence-based strategies to improve it. Particularly relevant for tics, ADHD, and anxiety.
Community data shows strong correlation between screen time and symptom severity. Here's what's worked for families and patients.
Evidence-based approaches including CBIT, mindfulness, and breathing techniques adapted for people with tics and anxiety disorders.
What community members and clinicians have noticed about diet, inflammation, and neurological symptoms — with a focus on what's actually practical.
The evidence for exercise as a symptom management tool across conditions — and how to build a sustainable routine when symptoms are unpredictable.
Plain-language explainers for each condition — what's known, what's still being researched, and how to talk to your doctor about it.
How to advocate for your child with teachers, administrators, and school counselors — including template letters and IEP guidance.
Scripts and strategies for explaining neurological conditions to extended family, friends, and colleagues who may not understand.
Resources specifically for parents and caregivers — because taking care of yourself is part of taking care of someone else.
Share aggregate clinical observations, track emerging patterns across practices, and collaborate with peers — all HIPAA-compliant.